vitiligo

A Holiday Guide to Giving to the Vitiligo Community

Tis the season to give! And the vitiligo community of doctors, patients, advocates and researchers need your support. To help you navigate the numerous needs of the vitiligo community this year, we’ve prepared a guide to giving. Will you consider making a donation to one of these organizations?

Global Vitiligo Support Community

Who They Are: Established in 2016, the Global Vitiligo Support Community (GVSC) is a coalition of patients representing vitiligo support groups and promoting unity. Headed by Dr. Richard Huggins, a dermatologist at Henry Ford Hospital, the group serves as a forum for information-sharing and collaboration among vitiligo support organizations and provides resources and education for those with vitiligo. Learn more about the GVSC at http://www.vitiligoworkinggroup.com/global-vitiligo-support-community.

How to Give: The GVSC accepts donations online through the Henry Ford Health System at http://bit.ly/1Nx2yBx. Please note that donations will go to the Vitiligo Working Group but will be given to the GVSC.

Vitiligo Working Group

Who They Are: The Vitiligo Working Group (VWG) is an international team of dermatologists and scientists from 15 countries working to improve the lives of people with vitiligo and unite awareness and research efforts around the condition. The group brings together clinicians, researchers, support group, industry leaders, patients, advocacy groups and regulatory bodies to educate people about vitiligo and treatments and find a cure. Learn more about the VWG at http://www.vitiligoworkinggroup.com/.

How to Donate: The VWG accepts donations online through the Henry Ford Health System at http://bit.ly/1Nx2yBx.

John Harris with the University of Massachusetts Vitiligo Clinic and Research Center

Who They Are: Dr. John Harris, director of the University of Massachusetts Vitiligo Clinic and Research Center and part of the Vitiligo Working Group, is on a mission to find a cure for vitiligo. A dermatologist and scientist, Dr. Harris diagnoses and treats patients in his weekly vitiligo specialty clinic and also manages a laboratory focused on better understanding what causes vitiligo with a goal of developing new and better treatments and ultimately, a cure. Meet Dr. Harris and learn more about his work at http://www.umassmed.edu/vitiligo/about/.

How to Give: Donations can be made online, over the phone or via check. Visit http://www.umassmed.edu/vitiligo/support-vitiligo/ for details on how to contribute.

VITFriends

Who They Are: One of the largest vitiligo support group networks in the U.S., VITFriends was launched in 2009 to support and enhance the quality of life of those affected by vitiligo through networking and education. A nonprofit 501(c)(3), the Massachusetts-based organization now has nine vitiligo support groups across the country including Connecticut, North Carolina, South Carolina, Delaware, Minnesota and Indiana. Learn more about VITFriends at http://www.vitfriends.org/.

How to Give: Donations can be made online at http://www.vitfriends.org/donate.htm.

American Vitiligo Research Foundation

Who They Are: A Florida-based 501(c)(3) nonprofit, the American Vitiligo Research Foundation (AVRF) provides public awareness about vitiligo through education and counseling with a focus on children and their families. The nonprofit also supports vitiligo research that is done without the use of animals. Learn more about the AVRF at http://www.avrf.org/.

How to Give: The AVRF accepts online donations through Paypal at http://bit.ly/2hE5SPS.

Vitiligo Bond

Who They Are: Vitiligo Bond is a nonprofit 501(c)(3) that strives to provide support groups, raise public awareness and increase funding for research and treatment of vitiligo. Through wellness program, self-esteem exercises, events and ambassador efforts, Vitiligo Bond empowers those with vitiligo and spreads the word to increase empathy and understanding. Learn more about the nonprofit at http://vitiligobond.org/.

How to Give: Vitiligo Bond accepts donations online via Paypal at http://bit.ly/2h71OXE.

Vitiligo Research Foundation

Who They Are: The Vitiligo Research Foundation (VRF) is a New York-based 501(c)(3) nonprofit organization supporting and funding vitiligo research and outreach around the world. With a mission of encouraging organized, effective research, the VRF monitors medical progress in the industry, develops research programs and provides educational platforms by hosting master classes for doctors and supporting World Vitiligo Day. See what the VRF has achieved to date at http://vrfoundation.org/foundation/results-to-date.

How to Give: The VRF takes donations online via credit card and Paypal, or through a check or money order. Visit http://vrfoundation.org/how-to-help/donate-today for details.

Thank you for considering a donation to help the vitiligo community!

2 823
Erika Page

Erika Page is a writer and blogger with universal vitiligo. Her first spots appeared on her spine when she was seven years old and today vitiligo covers her entire body. Based just south of Washington, D.C., Erika founded Living Dappled to create a community of inspiration and hope for girls and women living with vitiligo.

Leave a Reply