girl with vitiligo

Meet the 2016 Guest Bloggers Behind Living Dappled

Living Dappled is a blog for girls and by girls with vitiligo – and that’s why our guest bloggers are so important to our mission. As bloggers for Living Dappled, these eight women have written articles about their personal experiences with vitiligo since we launched in June.

According to John Harris, director of the University of Massachusetts Vitiligo Clinic and Research Center, everything that needs to be done for vitiligo patients, including funding, research and lobbying, comes back to raising awareness by telling the stories of people with vitiligo.

“People look at vitiligo and think it’s ‘not a big deal’ because it’s ‘just cosmetic,’” explained Dr. Harris, a member of the Vitiligo Working Group. “But I know firsthand the pain that my patients go through and it’s not just cosmetic – it’s real. These stories need to get out so that we can build the case for funding and research for vitiligo.”

You heard the doctor – there aren’t enough people talking about their lives with vitiligo today to demand substantial action towards finding a cure. But we can change that – you can change that. And these guest bloggers are changing that.

Meet the women behind the stories on Living Dappled:

Sandra Reese

Sandra Reese is a New York-based writer and fashionista. She’s finishing her communications and public relations major at SUNY Cortland in New York while running social media for the Vitiligo Research Foundation. In her free time, she’s the voice behind the fashion blog Sandy RE.

Tiffany Posteraro Grant

Tiffany Posteraro Grant is a New York based entrepreneur and owner of Perfect Penguin Consulting, a digital dating consultation company. In her free time, she enjoys fitness, reading and time spent with her husband and two corgis. (And she’s going to be a first-time mom in 2017!)

Alicia Roufs

Alicia Roufs is the chapter leader of VITFriends Minnesota and has been living with vitiligo since she was 3 months old. She lives in Minnesota with her husband Dominic, son Herbie, and their dog Bob.

Sarah Olmstead

Sarah Olmstead is a student who is just as comfortable in the big city as she is in the stands of the local high school football game. The Georgia girl loves to spend time with her family and corgi

Archie B.

Archie B. is a mother, model and vitiligo awareness advocate currently working on a clothing line to address the needs of the vitiligo community.

Karen Drabik Spivey

Karen Drabik Spivey is the mother of Living Dappled founder, Erika Page, and is the daughter of a woman with vitiligo. Raised in Michigan and Virginia she is the proud mother of four. She and her husband have resided in Maryland for the past 30 years.

Zoila Holt

Zoila Holt is a lifestyle blogger, student and YouTube junkie who loves to sing. Originally from El Salvador, these days she calls Vancouver home.

Natalie Ambersley

Natalie Ambersley is a London-based blogger and finance personal assistant who has written for various media outlets such as Mind & Skin, Ditch the Label and The Vitiligo Society. Her blog, Just Being Us (www.beingjustus.co.uk), is a lifestyle blog that also documents her journey with vitiligo.

Interested in becoming a guest blogger for Living Dappled? Submit a sample story for consideration at erika@livingdappled.com or get in touch to learn more.

Photo by Tiffany Posteraro Grant.

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Erika Page

Erika Page is a writer and blogger with universal vitiligo. Her first spots appeared on her spine when she was seven years old and today vitiligo covers her entire body. Based just south of Washington, D.C., Erika founded Living Dappled to create a community of inspiration and hope for girls and women living with vitiligo.

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