Bulletin Board
If there’s something out there for those with vitiligo—you’ll find it here. Welcome to our digital ‘bulletin board’ for the vitiligo community. Scroll to find open research studies, volunteer support opportunities, casting calls, awards and more. To submit an opportunity, please email erika@livingdappled.com.
Category: Research
Description: VIGOR Research is looking for individuals in the U.S. or Canada with vitiligo, and their family members who do not have vitiligo, for a new online five-year NIH-funded research study. The aim of this study is to understand the causes of vitiligo and predict who might be at risk of developing it. The outcomes of this study will be helpful in learning how to prevent vitiligo and generate ideas for developing a cure by correcting the root causes. VIGOR Research is seeking 1,000 participants, including those who have vitiligo and their family members–including parents, siblings, children, and cousins–without vitiligo. Participants will engage in a five-year study via an online community. All information provided will remain confidential, and all participants will remain anonymous during the entirety of the project.
Learn more and apply: https://vigor.umassmed.
Category: Focus Groups + Surveys
Description: Share your opinion to benefit the vitiligo community: UMass Chan Vitiligo Clinic & Research Center and renowned vitiligo physician-scientist John E. Harris, MD, PhD, are seeking to create new educational materials to support individuals with vitiligo and their family members. The Center is looking for people who are willing to volunteer to share their opinions about vitiligo informational materials. Dr. Harris will be hosting focus group meetings and conducting online surveys. The focus groups will be 90-minute sessions, and the online surveys will not take more than 60 minutes to complete. If you are interested in participating, you can fill out the very short form at the link below.
Learn more and apply: https://vigor.umassmed.
Category: Research
Description: The Walsall Healthcare & The Royal Wolverhampton NHS Trusts and the University of Birmingham, invite people to take part in the INTERCEPT research study. This study aims to gather participants’ views about how severity (mild, moderate and severe) and relapse/flare-up in vitiligo is described, which will then be used to help develop an international definition. This will improve the evaluation of treatment effectiveness and guide funding decisions.
Participants will join a face-to-face or online (Zoom) focus group, lasting 1.5 to 2 hours. You will have the opportunity to share your views on how vitiligo severity and relapse/flare-up should be measured, focusing on what matters most to you.
Who can participate in this study?
Learn more and apply: j.e.jones@bham.ac.uk
Category: Volunteer Opportunities
Description: UK-based nonprofit The Vitiligo Society is looking for volunteers to serve as “vitiligo ambassadors” for the organization. Applicants should live in the UK and may be asked to:
Learn more and apply: https://docs.google.com/forms/d/e/1FAIpQLSczPAvo-EcEmcbdpYsbA6fEzu0wCvaqftatIYR4GnR_gH0I6w/viewform?usp=sf_link
Category: Volunteer Opportunities
Description: UK-based nonprofit The Vitiligo Society needs volunteers who love helping people to serve as Community Support Volunteers. In this role a team of volunteers provides support to the organization’s mission by answering community emails, volunteering monthly to help facilitate the Live VitChat Service and volunteering to help support online VitSupport Group sessions.
Learn more and apply: https://docs.google.com/forms/d/e/1FAIpQLSczPAvo-EcEmcbdpYsbA6fEzu0wCvaqftatIYR4GnR_gH0I6w/viewform?usp=sf_link