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Top 100 Resources for Anyone with Vitiligo
 

Top 100 Resources for Anyone with Vitiligo

Anonymous

Whether you’re new to living with vitiligo or have been diagnosed for years, you are likely here looking for the same thing—answers. Those answers might lie in education (like how to get a diagnosis), inspiration (like a confidence-boosting tee) or support (like finding a local group) depending on the challenge you’re facing or goal you’re seeking as you navigate life with this condition.

The good news? In the past decade, the number of resources for those living with vitiligo have exploded. There are more nonprofits, support groups, blogs, books, toys and more for vitiligo and representing vitiligo than ever before. And that’s exactly why we’ve decided to curate our favorites to share with you. 

Below you’ll find our top 100 resources for the vitiligo community. This collection includes topics like educational reading, beauty and skin guides, resources for children and more. These resources are the top-talked about guides, products and sites in the vitiligo community—and some of the personal favorites of our editors.

Top resources for those newly diagnosed with vitiligo

Start here—our essential collection of everything you need to know if you’re new to vitiligo. Whether you just found your first spot or just started seeking a diagnosis, we’ve got you covered.

  1. Guide to getting a vitiligo diagnosis
  2. Free downloadable guide to navigating life with vitiligo (subscribe to get access)
  3. 21 no b.s. facts about vitiligo
  4. This explanation of vitiligo as a factory metaphor
  5. How to find the right dermatologist
  6. How to find a vitiligo specialist (check out this global map)
  7. How to support someone living with vitiligo (to share with your family and friends)
  8. 17 famous people living with vitiligo (how many did you know?)
  9. Tips for answering questions about your vitiligo (or not)
  10. This POV on why community matters when you live with vitiligo

Top educational articles about vitiligo

Consider this a crash course in Vitiligo 101: all the basics about the condition—how it starts, who can get it, related conditions and more—all in one place.

  1. What to know about vitiligo as an autoimmune disease
  2. 20 vitiligo statistics that you might not know
  3. 5 types of vitiligo
  4. 8 things you might not know about vitiligo
  5. What you need to know about chemicals and vitiligo
  6. What to know about hearing, vision and vitiligo
  7. Your guide to oxidative stress in vitiligo—and the role antioxidants play
  8. The science behind why a cut can turn into vitiligo
  9. What to know about diet, vitamins and vitiligo 
  10. 3 autoimmune diseases you should screen for if you live with vitiligo

Top social media resources for vitiligo

On social media, skin positivity is trending and online groups are thriving. Social media platforms offer those with vitiligo spaces to connect, share stories and learn from each other. 

  1. Vitiligo Life Facebook group, one of the biggest organic social groups
  2. The r/Vitiligo subreddit (where to ask all of your questions)
  3. #vitiligo on Instagram with more than 813k posts
  4. The world’s first AI Guide on Vitiligo
  5. Watch the latest #vitiligo videos on Tiktok (97k posts!)

Top beauty and skin resources for vitiligo

Here’s your guide to covering and complementing vitiligo with makeup, in addition to keeping your skin sun-safe—complete with recommendations from real women living with vitiligo.

  1. Our shop of top reader-rated makeup and skin products
  2. Our annual beauty and skin product survey (go ahead, fill it out!)
  3. 6 brands that created vitiligo makeup and camouflages products
  4. 5 things to know about covering and camouflaging vitiligo 
  5. Why you need to wear sunscreen when you live with vitiligo 
  6. 7 tips for choosing and applying sunscreen
  7. 10 ways to keep your vitiligo sun-safe
  8. UV detection stickers, like these from Uvify
  9. 5 UPF clothing brands to protect your skin from the sun
  10. This list of 10 derm-approved sunscreens

Top vitiligo organizations and support groups

Your guide to the top vitiligo research, advocacy and community organizations around the world.

  1. The Global Vitiligo Foundation, an international nonprofit creating unity
  2. Vitiligo Research Foundation, a nonprofit focused on research and treatments
  3. MyVitiligoTeam, an online support network for vitiligo
  4. Vitiligo Society, a UK charity providing education and support for people with vitiligo
  5. Vitiligo Support International, a non-profit patient advocacy organization
  6. The American Vitiligo Research Foundation promotes education and community support
  7. VStrong, a support group based in Detroit
  8. Litty Ligo, a support group focused on the black and brown experience of vitiligo
  9. Beautifully Unblemished, a Florida-based support group with a robust events calendar
  10. VitFriends, a national US support group

Top informational blogs, books and downloads about vitiligo

These are the newsletters and blogs you’ll want to subscribe to, and books you’ll want to reference. Many are written by medical professionals who specialize in vitiligo, so you can feel confident in their expertise.

  1. VitLife, a subscription-based blog by the Vitiligo Society
  2. Speaking of Vitiligo, a blog by Dr. John Harris, a leading dermatologist and expert in vitiligo
  3. Unite for Vitiligo, a vitiligo news outlet
  4. MyVitiligoTeam, an online support network with a great resources section
  5. A No-Nonsense Guide to Vitiligo, a comprehensive educational guide to vitiligo
  6. The Definitive Guide to Vitiligo, a free ebook available for download
  7. The Vitiligo Research Foundation’s Vitiligo Q&A in 8 different languages
  8. UK research study showing the impact of living with vitiligo
  9. Living Dappled’s weekly email newsletter (see you in your inbox)
  10. National Institute of Health’s downloadable vitiligo overview

Top books/TV/media featuring vitiligo 

Vitiligo representation is getting easier to find—whether in TV, books or even video games. Here’s a roundup of vitiligo featured in everything from documentary films to iPhone games.

  1. Shades of Pale, a stunning coffee table book by photographer Elisabeth Van Aalderen
  2. “New Model Agency,” a Channel 4 series featuring model Jasroop Singh
  3. “Naked Education,” a Channel 4 series featuring vitiligo advocate and model Natalie Ambersley
  4. More Than Our Skin, an inspiring documentary featuring real women with vitiligo
  5. How to Disappear Completely, a heartfelt novel featuring a character with vitiligo
  6. Vitiligo representation in Animal Crossing, an iOS video game
  7. Vitiligo skin is now available in The Sims 4, in partnership with Winnie Harlow
  8. Nova, a Call of Duty character with vitiligo, inspired by a real-life Colorado vitiligo model
  9. Strong in the Skin I’m In, an autobiography by Joti Gata-Aura
  10. This Is Vitiligo YouTube Series featuring real experiences from real people

Top resources for kids with vitiligo

From toys and books to songs to support groups and more, this is the ultimate roundup of resources for little ones living with vitiligo (and their grown-ups).

  1. I’ve Got Spots Song on Spotify (you won’t be able to stop singing it)
  2. A vitiligo Barbie (one of our favorites)
  3. I Absolutely, Positively Love My Spots, a heartwarming children’s book
  4. The cutest motivational lunchbox notes for kids with vitiligo
  5. Pen Pal Patch program to match with your bestie with vitiligo
  6. Camp Victory overnight conference for kids with vitiligo
  7. A plush unicorn with vitiligo
  8. I’ve Got Spots children’s book
  9. An adorable crochet vitiligo doll
  10. Different Just Like Me children’s book and educational website
  11. 10 psychologist-recommended ways to help a child with vitiligo
  12. Free School Support Pack download from the Vitiligo Society
  13. Educational posters for kids with vitiligo (free download)
  14. Super Litty Kids Committee, a Facebook group
  15. Little wooden peg doll with vitiligo

Top vitiligo advocacy and event resources

Vitiligo has come a long way in recent years, but more can always be done to raise awareness of and advocate for the condition. Here’s your guide to fighting for a better future for vitiligo.

  1. Your guide to World Vitiligo Day, celebrated every June 25th
  2. The annual USA World Vitiligo Day 3-day event
  3. #LetsTalkVitiligo campaign (and how you can join)
  4. Share your story to support the fight for insurance
  5. Ways to support the vitiligo community with your time, money and talent
  6. Sign the petition to get World Vitiligo Day added to the UN calendar
  7. Our curated calendar of vitiligo community events
  8. Some of the most influential people living with vitiligo
  9. Glamour article on why June 25th matters
  10. 6 ways to be a vitiligo advocate during Vitiligo Awareness Month

Top confidence-boosting resources for vitiligo

Let’s be real: living with vitiligo isn’t always easy. Start here if you need support options to help you live life well with vitiligo. 

  1. Living Dappled Love Notes, a personalized email of encouragement (sign up to get a note)
  2. Gorgeous art print featuring a woman with vitiligo 
  3. Adorable vitiligo sticker pack (so many places to put these)
  4. This guide to living confidently with vitiligo
  5. Dappled Darlings Community, Living Dappled’s private membership network (come hang with us)
  6. 50 positive affirmations for living with vitiligo
  7. 7 self-care tips for living with vitiligo 
  8. The Vitiligo Society’s It’s Called Vitiligo crewneck sweatshirt
  9. Living Dappled’s series of interviews featuring real women with vitiligo
  10. This blog post on the science of loving your skin

Did we miss a resource that you love? Share it with us! Send an email to erika@livingdappled.com.

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